Hallie Armengau-Allen is a competitive dancer with a grin wider than the Long Island Expressway. Her smile became even broader in January 2016, when a corrective heart procedure at Cohen Children's helped to prevent permanent lung damage and pulmonary hypertension.
Her heart made stronger, Hallie is channeling her gratitude into supporting cardiac research at the hospital. She's raised almost $4,500 so far.
Hallie's journey began in November 2015, when she visited Terry Amaral, MD, an orthopedic surgeon at Cohen Children's, who evaluated a discrepancy in the length of her arms. Dr. Amaral referred her to Joyce Fox, MD, a human genetics physician at the hospital, who identified a heart murmur and recommended Hallie also see Marion Rose, MD, a pediatric cardiologist.
As a first step, Dr. Rose performed an echocardiogram that showed Hallie had a large atrial septal defect (ASD - essentially a hole in her heart) plus enlargement in the right side of the organ. Together, Drs. Rose and Fox diagnosed Hallie with Holt-Oram syndrome, a disorder that often causes heart defects and abnormal development in bones of the upper limbs.
Then, Dr. Rose shared Hallie's echocardiogram results with Dipak Kholwadwala, MD, a pediatric interventional cardiologist. Hallie was a candidate for a transcatheter device procedure, which is much less invasive than open-heart surgery. Specialists can now close most ASDs with transcatheter devices, according to Dr. Kholwadwala, who added: "It's very gratifying to see a child undergo that procedure and not need open-heart surgery."
Dr. Kholwadwala deployed the devices (Hallie needed two) via a catheter threaded through a vein in Hallie's leg, up through her circulatory system to the heart defect. During the following months, Hallie's heart tissue surrounded the implants and closed the defect.